The International Susac syndrome Consortium                              Steering Committee

Guiding our consortium toward tomorrow's breakthroughs, the Steering Committee sets the strategic course that turns shared expertise into lasting impact.

Meet the Steering Committee

Prof. dr. Barbara Willekens, MD, PhD

Neurologist

Department of Neurology, UNiCA, Antwerp University Hospital (UZA), Antwerp, Belgium

Clinical and research focus on neuroinflammatory disorders of the central nervous system

Biomarkers, cohorts and clinical trials,  immunotherapies

PD Dr. rer. nat. habil.  Catharina C. Gross

Neuroimmuologist & Work Group Leader Scientific Head, QM & IVDR-representative

CSF- and Laboratory Diagnostics Neurology, Depart-ment of Neurology,  University Hospital Münster (UKM), Germany

Research focus on the role of Immunoregulatory Networks in Multiple Sclerosis and rare neuroimmunological disorders including Susac syndrome

PD Dr. Ilka Kleffner, MD

Neurologist

University Hospital Knappschaftskrankenhaus Bochum, Germany

Dedicated to Susac syndrome since 2005

Cofounder of EUSAC e.V.

https://eusac.net/

 

Prof. Todd Hardy, MD

Neurologist

MS and Neuroimmunology Clinics at Concord Hospital, Sydney, Australia

Clinical Professor in Medicine at the University of Sydney

Established and leads the Australian Susac's Syndrome Database (SuSAD)

Mariano Marrodan, MD, MSc

Neurologist

Fleni, Buenos Aires, Argentina

Leads the Latin American Susac syndrome database

Adi Wilf-Yarkoni, MD, MSc

Neurologist

Deputy Director, Department of Neurology
Head, Multiple Sclerosis Clinic
Rabin Medical Center, Israel

Prof. dr. Karim Sacré, MD

Physician-scientist

Professor of Internal Medicine at Bichat-Claude Bernard Hospital, Université Paris Cité, Paris, France

Established and leads French prospective study on phenotypic and etiological characterization of Susac syndrome