Acknowledgements

Scientific progress in rare diseases depends heavily on collective dedication and crucial financial support. At the International Susac syndrome Consortium, our collaborative research projects, international data sharing efforts, and clinical recommendations/guidelines are made possible through the generosity of funders and sponsors.

Gratitude to our funders

We extend our deepest gratitude to the organisations, research grant bodies, and charitable donors whose vital commitments allow us to deepen our understanding of Susac syndrome and improve patient care worldwide.

Utmost appreciations to all participants in our research

We want to express our heartfelt gratitude to all the patients, families and healthy control persons, who have participated in our clinical studies and research.

Your willingness to share your experience, medical data, and time is the foundation of everything we do. Because Susac syndrome is a rare and often a misrecognized condition, every single story, test result, and clinical insight matters deeply.

By participating in our research, you are not just helping us understand the disease better—you are actively driving the development of better understanding, earlier detection, targeted treatments, and refined diagnostic and treatment recommendations. You are giving future patients a faster path to answers and a better quality of life. We are profoundly grateful for your trust, your resilience, and your vital role in our mission.

Together, we are changing the future of Susac syndrome care.